Sickle Cell Equity for Hispanics: NAHN Innovations and Partnerships
Hispanics comprise 1:10 persons with Sickle Cell Disease (SCD), a debilitating disorder that is rare, familial, chronic and deadly. Hispanic comprise over 40% of newborns diagnosed with Sickle Cell Trait (SCT) in selected States. Despite this high prevalence and treatment advances, Hispanic Nurses and the larger Hispanic community have limited knowledge about sickle cell, resulting in avoidable morbidity, isolation, poor quality of life, and shortened lifespan. Disparities are grave in the Western US, home to pockets of geographically disbursed SCD populations, including immigrants and refugees, and a rise in multicultural families, all increasing SCD prevalence. September, which celebrates both Hispanic Heritage and Sickle Cell Awareness, is the perfect time to enhance Sickle Cell equity in Hispanics, focusing on increasing awareness, nursing competencies, and access to care.
CLICK HERE to watch a webinar jointly sponsored by The Pacific Regional Sickle Cell Collaborative (PSCRC), a 13 state federal HRSA supported initiative, and the National Association of Hispanic Nurses -Los Angeles Chapter (NAHN-LA).
It's important for healthcare providers, community workers, policy makers, and other SCD supporters to know that SCD affects diverse groups so that all people with SCD can be properly diagnosed and treated. CDC is sharing new resources to help spread awareness about the many faces of SCD.
A Message for Healthcare Providers: Sickle Cell Has Many Faces.